AUTISM SAFETY TOOLKIT

Keeping Our Children Safe A must-read for all parents and caregivers.

Autism presents a unique set of safety concerns for parents.  Unlocking Autism and NAA have teamed up to provide the following safety information for parents.  If you have suggestions or additions that you would like to submit for this page, please email nancale@aol.com. Please note:  Not all suggestions listed below are right for every family in every neighborhood.  Parents should carefully consider the best safety options for their individual child.

In a recent online survey conducted by NAA, an incredible 92% of the respondents said their autistic child was at risk of wandering.  This is a problem that must be addressed in every city and town across America.  Please review the following information and contact your local first responders to get a plan in place for your child and others who may be at risk in your community. 

Are You Prepared for an Autism Emergency?

To ensure safety and lower risk for a child or adult with autism, parents and care providers will need to become proactive and prepare an informational handout.

A leading cause for concern are children and adults who run away or wander from parents and care providers.  Tragically, children and adults with autism are often attracted to water sources such as pools, ponds, and lakes. Drowning is a leading cause of death for a child or adult who has autism.

Wandering can occur anywhere at anytime. The first time is often the worst time.  Another concern is preparation in the event that you become incapacitated or injured while caring for a person with autism at home or in the community.

An informational handout should be developed, copied and carried with you at all times--at home, in your car, purse or wallet. Also circulate this handout to family members, trusted neighbors, friends and co-workers. The handout will also come in handy if you are in an area other than your neighborhood and are approached by the police.

If wandering is a concern, contact law enforcement, fire and ambulance agencies.  Ask your local 911 call center to "red flag" this information in their 911 computer data base. Dispatchers can alert patrol officers about your concerns before they arrive. When we provide law enforcement with key information before an incident occurs, we can expect better responses.

 Alert your neighbors
The behaviors and characteristics of autism have the potential to attract attention from the public. Law enforcement professionals suggest that you reach out and get to know your neighbors.

• Decide what information to present to neighbors
• Does your child have a fear of cars and animals or is he drawn to them?
• Is your child a wanderer or runner?
• Does he respond to his name or would a stranger think he is deaf?
• Plan a brief visit to your neighbors
• Introduce your child or adult or provide a photograph
• If a neighbor spots your child outside of your yard, what is the best way for them to get your child back to you?
• Are there sensory issues your neighbors should know about?
• Give your neighbor a simple handout with your name, address, and phone number. Ask them to call you immediately if they see your son or daughter outside the home. This approach may be a good way to avoid problems down the road and will let your neighbors:
• Know the reason for unusual behaviors
• Know that you are approachable
• Have the opportunity to call you before they call 911

Knowing your neighbors can lead to better social interactions for your loved ones with autism.

Prevention
 If wandering is an issue for your family, consider contacting a professional locksmith, security company or home improvement professional.

Autism Emergency Contact Handout Model

• Name of child or adult
• Current photograph and physical description including height, weight, eye and hair color, any scars or other identifying marks
• Identify your child's favorite song, toy or character
• Names, home, cell and pager phone numbers and addresses of parents, other caregivers and emergency contact persons
• Sensory, medical, or dietary issues and requirements, if any
• Inclination for elopement and any atypical behaviors or characteristics that may attract attention
• Favorite attractions and locations where person may be found
• Likes, dislikes--approach and de-escalation techniques
• A list of things that frighten your child
• Method of communication, if non-verbal ­ sign language, picture boards, written word
• ID wear ­ jewelry, tags on clothes, printed handout card
• Map and address guide to nearby properties with water sources and dangerous locations highlighted
• Blueprint or drawing of home, with bedrooms of individual highlighted

For more information, visit http://www.autismriskmanagement.com/ - by Dennis Debbaudt © 2005

Books by Dennis Debbaudt
Autism, Advocates and Law Enforcement Professionals:
Recognizing and Reducing Risk Situations for People with Autism Spectrum Disorders, Debbaudt, D.
LondonPhiladelphia. Jessica Kingsley Publishers

Chapters In:
Debbaudt, D. (2003) Safety Issues for Adolescents with Asperger Syndrome. In Liane Holliday Willey (ed) Asperger Syndrome in Adolescence: Living with the Ups, the Downs and Things in Between. London -
Philadelphia: Jessica Kingsley Publishers

Debbaudt, D. (2006) Disclosing to the Authorities. In Dinah Murray (ed) Coming Out Asperger: Diagnosis, Disclosure and Self-Confidence. London - Philadelphia.
Jessica Kingsley Publishers

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Provide local first responders with information on your child.

http://www.papremisealert.com/sitebuildercontent/sitebuilderfiles/responder.pdf
Fill out and print this form from Pennsylvania Premise Alert, then deliver it to your local police and fire departments.

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Teach your child to swim.

Too often children with autism who wander are attracted to water.  Be sure your child knows how to swim unassisted.  Swimming lessons for children with special needs are available at many YMCA locations.  The final lesson should be with clothes on.

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Get an ID Bracelet for your child.
Include your name and telephone number. State that your child has autism and is non-verbal if applicable.  Here are some examples.
http://www.medicalidstore.com/
http://www.mypreciouskid.com/medical-id-bracelet.html
If your child will not wear a bracelet or necklace, consider a temporary tattoo with your contact information. Tattoos with a Purpose are available at http://www.nationalautismassociation.org/products.php?cat=48

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Consider a personal tracking device.

Gemini GPS Tracking Unit

Personal GPS tracking device works with your computer or mobile phone.  Monthly service fee.

Ion Kids Tracking Wristband
http://www.nationalautismassociation.org/products.php?cat=34
http://www.ion-kids.com
Provides notification to parent when child wanders past a pre-set distance.  Allows parent to track child while still within a 500 sq. yard area.  Waterproof wristbands are available.

Project Lifesaver Tracking Systems
http://www.projectlifesaver.org
Project Lifesaver works in coordination with local rescue personnel.   Search equipment is housed and maintained by local police or fire departments.  At-risk individuals are provided with a transmitter wristband which is replaced monthly.  Initial setup and personnel training costs approximately $7,000.  For a program DVD and package to present to your local first responders, please contact Project Lifesaver at www.projectlifesaver.org.

Recent article about Project Lifesaver Tracking System
http://www.nj.com/news/gloucester/local/index.ssf?/base/news-6/1180077153288140.xml&coll=8

Care Trak Transmitters
http://caretrak.com/
Care Trak utilizes the same technology as Project Lifesaver, but tracking equipment is operated by the caregiver and not local law enforcement or first responders.

Angel Alert Child Distance Monitor
http://www.walmart.com/catalog/product.do?cpncode=11-29124948-2&dest=9999999997&product_id=2476229&sourceid=1500000000000002993980&srccode=cii_16435691

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Secure Your Home
Prevent your child from slipping outside unnoticed by:

• Installing secure deadbolt locks that require keys on both sides
• Install a home security alarm system
• Install inexpensive battery-operated alarms on doors and windows to alert you when they are opened - for an example visit: http://www.mypreciouskid.com/wireless-door-alarm.html.  These are available at stores like WalMart and Radio Shack.
• Place hook and eye locks on all doors, above your child's reach
• Fence your yard

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Helpful Links - Please visit these websites for more safety ideas.

Autism Risk Management
http://www.autismriskmanagement.com/

Pennsylvania Premise Alert
http://www.papremisealert.com/ 
The Premise Alert Program gives families the opportunity to provide critical medical information to first responders before a crisis. Families can have a difficult time relating necessary information in times of extreme stress. This program also gives first responders advanced knowledge of special needs individuals in their community allowing them to respond with greater accuracy which increases positive outcomes.

The Law Enforcement Awareness Network
http://www.leanonus.org
It is the mission of L.E.A.N. On Us to provide first responders with information and resources that will allow them to better serve individuals within their communities affected by hidden disabilities and mental illness.

My Precious Kid
http://www.mypreciouskid.com/
Child Safety Products

Tips for First Responders
http://cdd.unm.edu/products/tips_web020205.pdf

Service Dogs
http://autismservicedogsofamerica.com/
http://www.4pawsforability.org/autismdogs.htm